March 19, 2021

Oh man...so what has happened..? I have been in and out of the hospital, had like a dozen seizures, things just haven't been going my way. It's been like 11 days since my last seizure, so I'm feeling good about that! Feeling like I can sit down and write this out finally. So two weeks ago Wednesday evening, I had a grand maul seizure outside my neighbors house, thank you neighbors for helping my wife out! Followed by several more focal seizures here at the house, followed by my wife calling the ambulance. I went into the hospital and was released at like 1-2 in the morning. Then I woke up and went to treatments on Thursday and Friday, only to have another focal seizure on Sunday, well several more in a row...like three or four. They then released me late Sunday afternoon into the evening. I got up and went to my treatments Monday morning and had another Six seizures here, another few on the way to the hospital, another several through the night, just to wake up in the morning still suffering seizures, so I don't know how many that was... But they managed to get me on Vimpax, a new seizure medication along with steroid to calm it down at which point I started not having the seizures late in the day Tuesday afternoon. So I stayed in the hospital for another few days to make sure I was clear of that, they let me out on Thursday afternoon I think it was. They kept me off the chemo meds and on the 100 mg of Vimpax, along with the 1500 mg of Keppra, Dexamethasone 4mg twice daily until Sunday. I've since titrated down off the Dexamethasone down from 8 mg to 6 mg which has helped my sleep a bunch. My wife has to play doctor with these people as she did some reading on the Dexamethasone and found that it really shouldn't be taken after 2 pm. So I went from taking 8 mg twice daily, once at 9 am and once at 9 pm...to 4 mg daily at 9 am and one 2 mg pill at 2 pm. Still taking the Keppra and Vimpax at 9 am and 9 pm.  My wife has also negotiated taking me off the chemo meds over the weekend to give my brain a break from that treatment, so we just have 5 days a week there. My radiation doctor asked me about taking something for my stomach since it isn't protected from the Dexamethasone, which golly gee, that would be nice since they weren't giving me that at the hospital along with my Dexamethasone and my tummy was getting upset. 

So in any case, thank you to my wife! You are the best for working this all out for me! I feel like I'm on the right path now and might make good headway on these treatments. I can't say enough good things about you and the way you have treated me in the past two weeks! Taking care of me and doing the dishes, cooking dinner and serving me my pills and all that you do! I'm so glad that I can help again even though you say you don't need it!